Scary News and Big Hope – a New Journey Begins

By: JANA GREENE

Hello, friends. I have decided to share my current situation, in the hopes it will help me to process what’s going on, and maybe give someone else hope who is struggling similarly.

I kind of hate that about myself – I want to be mysterious and private, I am just really bad at handling things alone, and there’s nothing worse than feeling like you’re in a sinkhole by yourself, (and nobody will even admit there IS a sinkhole, much less throw you a rope.)

So, I’m sharing this in the hope that you guys will lob some prayers and hope and good vibes my way. I could use it. I also hope by sharing this, maybe someone else facing a difficult diagnosis will feel less alone. I have decided to blog about my journey. Feel free to follow here at wordsbyjanagreene.com if you want to keep up.

Thursday, I saw an oncology hematologist at the Zimmer Center, because I’ve had whacky labs and a ridiculous WBC count for a while now. I have been feeling extra run-down. I already have a host of other major medical issues. Why was I being sent to an oncology specialist? Huh. I figured it was just a mix up. It was not. I was told to expect bad news, which was actually helpful to my mental health, even though was the longest weekend of my life.

Today I got the call that confirmed that I have Chronic Lymphocytic Leukemia. “CLL” is sometimes described as “the kind of leukemia you want, if you MUST have leukemia.” It is the only cancer that never goes away – there is no getting rid of it, it’s in my marrow. Many people live 10-20 years with it, sometimes without needing continual treatment. It is also extremely slow-growing and highly treatable. And I’m hanging my hat on that. But it’s still cancer. The next step is a bone marrow biopsy, and a PET scan to make sure it hasn’t spread. The doctor suspects it has not, and I hope he’s right.

On the one hand, I have answers. Mystery pop-up fevers all the time? Oh. Excessive bruising? Well, that makes sense. Mind-melting fatigue? Whelp. On the other hand, I have a long road ahead and I’m organically TIRED. Not just physically, but in every way.

I am pretty sure I have done all five grief stages in the past few days. Denial – poring over my labs determined to find some easy, benign explanation for all of it. And hitting a wall with obvious markers all weekend. Anger – WHAT THE ACTUAL F&%$? Bargaining – well, maybe not so much. At the end of the day, God is in control, and I am not, and I trust that he knows better than me. I feel his presence so intensely that I know the Spirit is buoying me up. I seem to be teetering between Depression (it’s a bummer any way you slice it,) and Acceptance currently. And the notes of acceptance are starting to be the dominant flavor.

I plan on letting my feelings have their say in all of this, even though it feels like my brain is being operated by untrained carnie workers right now.

The very hardest thing about this has been breaking the news to my three precious daughters yesterday. Literally the hardest thing I’ve ever done. I am so fortunate – they are all such incredible people and so supportive. And my husband is my ROCK. And I have such beautiful friends surrounding me.

Some people might think I’m the unluckiest woman in the world, what with so many health issues. But I see it differently – how lucky am I to be surrounded with so much love? So lucky. This is not going to steal my faith. Or my sense of humor. Or hope. It can’t. I won’t let it.

Blessed be, friends. I love you all.