By: JANA GREENE
I had horrible night sweats last night. Nothing like waking up pained and feeling like you wet the whole bed (I did not, just sweat.) So, I woke up to change my PJs and my sheets and couldn’t manage to go back to sleep. That was the 2-4 a.m. hustle, even before the sun was up.
It reminded me of getting up with my babies when they were little. I would change their diapers and onesies and change their sheets if they had leaked a little. I would calm them with kind, soft words, and cradle them to my breasts for a little feeding. Whatever discomfort they had was soothed. Whatever tiny human need they had was met. Thirst, hunger, general fussiness – all of it within my ability to “fix.”
Then I remember endless nights when they had colic, and I was sleep-deprived and unable to make them feel better instantly. And on those nights, walking the floor, jiggling a fussy baby, I sometimes cried too, right along with them. Little did I know I would cry right along with them all their lives, when colic was replaced by the struggles of growing up.
I didn’t consider that they would develop needs I was helpless to aid in the future, and I certainly didn’t think about my own needs; the ones I would also be unable to manage. I just lived right there in the moment. I’ve been trying to get back to that mindset ever since.
It makes me want to cry now that I cannot soothe myself on mornings like this. I can’t fix leukemia.
I can change my sheets and tell myself kind, soft words, and cradle myself in a hug, even as I am drenched with sweat. I cannot seem to get enough rest, even though I may still have ten or twenty years – CLL is “the leukemia you want to have, if you have to have leukemia.”
But here’s the thing…I do not want to have it at all, please and thank you. It’s kind of the shitty icing on a shitty cake, as I was already battling a myriad of chronic conditions. I cannot imagine what things will be like as this thing progresses over the years. Ten to twenty years of endless night sweats and crippling fatigue? Gee. Thanks, I guess? I’m such a grateful person, in general. So, this journey has got me in all of my feels. Can gratitude and frustration exist at the same time? Lord yes, friend.
In the meantime, I will try to keep my PJs dry and my attitude from tanking, because on days like this, I just want to fahgettaboutit. But I cannot just fahgettaboutit, because I have people who love me, dammit. They still depend on me for less sophomoric troubles. And I have such a wonderful circle of support; people who soothe me like a colicky baby when I want to give up. They know they can’t “fix” it, and I appreciate their trying anyway.
I know this piece would leave one to believe I’m a bitcher and a moaner. But see, I’m also a fighter, even as I cannot feel rested, and I’m flummoxed by the unknown. So, like a one-year-old learning to walk, I put one unsteady foot in front of the other, garnering self-praise when I teeter without falling, and crying when I do fall.
And in this 2-4 a.m. hustle, I will soothe myself and accept the soothing from others, and hopefully grow in the interim, just like a child, y’all. Because just like our children did under our watch, we are all still growing up. And we all live right in the moment, whether we like it or not.
Blessed be friends.
Words by Jana Greene 
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